World Elder Abuse Awareness Day is June 15. The day was designated by the International Network for the Prevention of Elder Abuse and the World Health Organization to increase sensitivity to the fact that, worldwide, 15.7% of older adults experience some form of mistreatment. In the U.S., about 1 in 6 is a victim…
Since 2016, the podcast series Making Gay History has been bringing the largely hidden history of the LGBTQ civil rights movement to life through the voices of the people who lived it. Season 5, in commemoration of the 50th anniversary of the Stonewall riot, has just been released.
By JoNel Aleccia and Melissa Bailey
Two years ago, nursing professor Kim Acquaviva asked a group of home care nurses whether they thought she was going to hell for being a lesbian. It’s OK if you do, Acquaviva said, but is the afterlife within your scope of practice?
After Acquaviva’s talk, an older nurse announced she would change how she treats LGBTQ people under her care.
“I still think you’re going to hell, but I’m going to stop telling patients that,” the nurse told Acquaviva.
By Ashleigh Byrnes
At nearly six-and-a-half feet tall, Army veteran Sharon Herron towers over most people in a room and tells a war story as well as anyone. An imposing, yet warm and charismatic figure, Herron both is—and isn’t—like every other Vietnam veteran you’ve ever met.
That’s because in 2005, Herron transitioned from male to female…
by Daniel B. Stewart et al
Little is known about what LGBT older adults think of, prepare for, and want for their end-of-life care experience. In order to fill the gap in knowledge, two researchers from Saint Louis University performed a study in which 17 LGBT individuals, 60 years and older were asked these questions:
1. What are LGBT older adults’ perceptions of end-of-life care?
2. Do LGBT older adults think and plan for their end-of-life care?
3. What are the concerns and challenges for LGBT older adults as they work toward their “ideal” end-of-life care experiences?
By Elliott Kozuch
HRC (Human Rights Campaign) Foundation and SAGE, the world’s largest and oldest organization dedicated to improving the lives of LGBTQ older adults, announced a historic partnership to fundamentally improve the experiences of LGBTQ older adults as they seek long-term care and services.
A centerpiece of the effort will be the Long-Term Care Equality Index (LEI), the first-ever nationwide assessment of how long-term care facilities are treating their LGBTQ residents. The new survey will build on the decade-plus success of the HRC Foundation’s Healthcare Equality Index (HEI), which scores healthcare facilities on policies and practices ensuring the equitable treatment and inclusion of their LGBTQ patients, visitors and employees.
by Michael Adams and Jay Brown
HRC and SAGE are announcing a historic partnership to make long-term care more inclusive of LGBTQ older adults. Made possible in part by a generous seed grant from Ted Snowdon and Duffy Violante, we are creating a Long-Term Care Equality Index (LEI), the first-ever nationwide assessment of how well long-term care facilities are treating their LGBTQ residents. We are also launching a nationwide campaign to raise awareness of the specific needs of LGBTQ elders…
Cities were chosen based on multiple factors, including the percentage of LGBTQ population in the area, the city’s score according to the Human Rights Campaign Municipal Equality Index, LGBTQ Chamber of Commerce presence, the number of gay-friendly senior communities, local and state legislation protecting the LGBTQ community, cost of living for the area, the city’s SeniorScore and more.
Joan E. Biren began to photograph at a time when it was almost impossible to find authentic images of lesbians and aimed to help build a movement for their liberation.
The Press Democrat
February 15, 2019
The late actress Bette Davis has been credited with the old adage: “Old age ain’t no place for sissies.”
If you’re part of the LGBTQ community, growing older can be even more challenging, with common issues such as loneliness and loss multiplied by a reluctance to access services that could help ease the pain.
“We feel we’re unworthy, and we are used to hiding,” said Gary “Buz” Hermes of Sonoma, who works as an LGBTQ aging consultant. “If you were bullied in school by your peers, you may not feel comfortable going to a yoga class or a life experience writing class at a senior center. Will I be judged and intimidated?”
In his “Aging Gayfully” class at the Finley Center in Santa Rosa, Hermes uses several tools he’s developed — such as reflection, forgiveness, gratitude and humor — to help empower LGBT elders with optimal aging strategies and to encourage them to access senior services. The discussions are aimed at helping people transition into their final act…
Caring for a spouse, partner, close friend, or family member is one of the most important roles you’ll play. As our loved ones age it’s likely a matter of when, not if, they will need our help. Nearly 44 million Americans—1 in 5 adults— are caregivers for a relative or friend over age 50.1 It may start with driving your loved one to get groceries or going to the doctor. Later, you may find yourself taking more time off from work, preparing meals, or handling bills.
If your loved one identifies as lesbian, gay, bisexual or transgender (LGBT), you will likely face extra challenges around caregiving. LGBT older adults are twice as likely to be single and four times less likely to have children than their non-LGBT counterparts. Many are estranged from their biological families which means they’re less likely to have the traditional caregiver support that many older adults rely on…
by Diverse Elders Coalition
Social isolation, health disparities and barriers to services
“LGBT and Dementia,” a recently released report by the Alzheimer’s Association and SAGE, outlines the unique challenges facing LGBTQ older adults living with Alzheimer’s and other dementias and their caregivers. The report outlines the unique issues that arise when Alzheimer’s disease, sexual orientation and gender identification and expression intersect.
“Living with Alzheimer’s or another dementia is not easy for anyone,” said Sam Fazio, director of quality care and psycho-social research at the Alzheimer’s Association. “But LGBT individuals can often face additional challenges that need to be considered and addressed to ensure this population gets respectful and competent care.”
by John Welsh
Potlucks and social networks help, as does training for health care staff
Potluck dinners may not solve the challenges faced by rural LGBTQ elders, but they are a frequent tool to fight the isolation faced by this vulnerable group.
They include a monthly discussion group organized by older lesbians in Montpelier, Vt. Dinners put on by the national group SAGE — which stands for Advocacy and Services for LGBT Elders — connecting older and younger members of the community are held each year.
by Lavina E. Tomer, Southern Arizona Senior Pride
LGBTQI+ people may experience loss with unique intensity. Why? This article was used as a hand-out in a presentation to hospice bereavement counselors and chaplains.
Studies, professional experience and personal reports indicate that: isolation, disclosure of identity and acknowledgment of relationships, life experiences that include bullying, violence, living with secrets, and fear of living an open, authentic life influence this community’s bereavement process. Being a member of a minority community that is marginalized, neglected, and hated must also be examined. All of these factors may increase the risk of heightened or prolonged bereavement, depression, compounded grief and disenfranchised grief. Fear of seeking professional help and bereavement support remain as barriers…
by Dave Hughes
The oldest boomers are entering their 70s, which means they’re starting to enter the nation’s independent living, assisted living and skilled nursing homes. Generally speaking, however, these facilities have lagged behind the diversification trends. Many are not prepared to provide welcoming environments to residents from a variety of orientations, religions and ethnic backgrounds.
Simply demonstrating compliance with federal, state, and local fair housing laws does not guarantee that the environment inside senior residences will be welcoming for all people. Creating an inclusive environment requires the will to do so…
When searching for a senior housing facility, most people ask the standard questions: What are the meals like? What are the costs?
But for LGBT people, the process becomes more complicated because they have to consider how LGBT-friendly the home is. Luckily, new diversity trainings for senior homes can help staff treat LGBT residents with respect and dignity.
Older LGBT people often face discrimination, especially in senior housing. LGBT senior Marsha Wetzel said she faced harassment and violence in her Niles nursing home and is now seeking legal redress. And in 2014, the National Resource Center on LGBT Aging Found that 46 percent of same-sex couples confronted adverse and differential treatment – ranging from gossip to violence- in their senior housing facilities.
But older LGBT people are more likely to be single and without children, forcing them to move into a home so they can receive care and not feel alone. With these shocking statistics and news stories about how LGBT people are treated in homes, it’s no surprise that 33 percent of LGBT seniors fear they would have to hide their sexuality in a nursing home.
After grieving the loss of her partner of 30 years, Marsha Wetzel, 70, moved into Glen St. Andrew Living Community, a senior housing facility in Niles in November 2014.
Wetzel signed a tenant agreement that guaranteed her three meals a day, laundry services and access to a community room. It also asked that she refrain from “activity that [St. Andrew] determines unreasonably interferes with the peaceful use and enjoyment of the community by other tenants” or that is “a direct threat to the health and safety of other individuals.” All other residents signed a similar agreement, binding them to this code of conduct.
Wetzel, who identifies as lesbian, was open about her sexuality with staff and residents. But instead of a warm welcome, she received hostility, she said. Other tenants called her derogatory slurs and made violent threats against her and these threats soon became reality, as other tenants spit at her and struck her in the head.
When Robert Bell and a man he was dating in the early ’70s broke up, the man threatened to call Bell’s boss and out him as gay, in hopes of getting him fired. When Roger Osgood went to his first gay bar in the ’70s at age 28, he was absolutely petrified but knew it was the only place he could meet people who were like him. When Lavina Tomer came out as a lesbian to her family in the ’70s, she was relieved they didn’t kick her out of the family… Society has come a long way in its treatment of the LGBTQ+ community, but as one aspect of their identities has become more accepted, they’ve gained another trait that, in some ways, has pushed them back toward the outskirts…
“This paper is divided into three sections. First, we present a general overview of the situation faced by LGBT older adults, people living with Alzheimer’s or another dementia, and caregivers. Next, we look at seven areas where LGBT identities intersect with Alzheimer’s disease: stigma, social isolation, poverty, health disparities, sexuality and sexual expression, barriers to utilizing existing services and living with HIV/AIDS. Finally, we conclude with recommendations in the areas of practice and research, recognizing that all changes to organization practice require a shift in policy and procedure…”
Mary Walsh and Beverly Nance did considerable research in 2016 before deciding to move into a continuing care retirement community outside St. Louis. They took a tour of Friendship Village Sunset Hills and were impressed by its pool and fitness center, a calendar crammed with activities, the newly built apartments for independent living. They had meals with a friend and with a former co-worker, and their spouses, all of them enthusiastic residents. “We’d met other people from the community, and they were very friendly,” said Ms. Walsh, 72, a retired manager for AT&T. “I was feeling good about it…”
LGBT people are more likely to become adult caregivers than the rest of the population, according to a 2015 AARP/National Alliance for Caregiving report. According to a study by SAGE, a national LGBT advocacy organization, about one in three older LGBT adults live alone, and 40 percent say their support networks have become smaller. In what way does being an LGBT caregiver differ? Here’s one way: “If you are in a non-married LGBT relationship, your relationship is not recognized by law,” says the Family Caregiver Alliance. “Under these circumstances, biological family members sometimes step in, take over decision-making authority, and exclude partners and close friends from being involved in the care of your friend or loved one…”
Three out of four adults age 45 and older who are lesbian, gay, bisexual or transgender say they are concerned about having enough support from family and friends as they age. Many are also worried about how they will be treated in long-term care facilities and want specific LGBT services for older adults.
These were among the findings of a recent national AARP survey, “Maintaining Dignity: Understanding and Responding to the Challenges Facing Older LGBT Americans.”
What are my housing rights as an LGBT senior? Are there laws that protect LGBT people from discrimination in housing? How does the Fair Housing Act apply to LGBT people? Are there any other housing protections at the federal level? Do senior housing communities have any legal obligation to protect LGBT seniors or address complaints of discrimination? Are there protections for LGBT seniors in housing establishments that also provide medical care? Are there laws in my state that protect seniors from housing discrimination?
Representations of older transgender people are nearly absent from our culture and those that do exist are often one-dimensional. For over five years, photographer Jess T. Dugan and social worker Vanessa Fabbre traveled throughout the United States creating To Survive on this Shore: Photographs and Interviews with Transgender and Gender Non-Conforming Older Adults. Seeking subjects whose lived experiences exist within the complex intersections of gender identity, age, race, ethnicity, sexuality, socioeconomic class, and geographic location, they traveled from coast to coast, to big cities and small towns, documenting the life stories of this important but largely underrepresented group of older adults. The featured individuals have a wide variety of life narratives spanning the last ninety years, offering an important historical record of transgender experience and activism in the United States.
SAN FRANCISCO (AP) — The unwanted were turned away from cafeteria tables. Fistfights broke out at karaoke. Dances became breeding grounds for gossip and cruelty.
It became clear this place had a bullying problem on its hands. What many found surprising was that the perpetrators and victims alike were all senior citizens.
Nursing homes, senior centers and housing complexes for the elderly have introduced programs, training and policies aimed at curbing spates of bullying, an issue once thought the exclusive domain of the young.
When MaryKay Kubota’s husband died unexpectedly at 49, she felt that the world kept going for everyone but her. Until that moment, the then 47-year-old mother of four, who had married at 19, managed their family’s fast-paced social life. “I didn’t have to think about what was next,” Kubota said. But after Guy Kubota’s death in 1997, even with two children still at home, “everything just stopped,” she recalled.
As her grief escalated, so did her feeling of abandonment.
“Nobody knew what to say in the situation, so they just left me alone,” said Kubota. Though they offered the standard “Let me know what you need,” Kubota, facing responsibilities she really couldn’t manage on her own, found it hard to ask for help…
A new view of living longer
by Jo Ann Jenkins, AARP CEO, AARP Bulletin, April 2018
»Read full article on AARP site
Societies around the world are coming up with creative, commonsense ways of adapting to the challenges posed by aging populations and doing it with existing resources. One example is Japan’s Watch Over service. For a small monthly fee, a Japanese postal carrier will check on an older resident along the mail delivery route and relay information about the resident’s well-being to family members using a tablet. The brilliance of this model is that it takes an existing infrastructure resource (a nationwide postal delivery network) and a seemingly unconnected challenge (isolated seniors) and puts them together. It works. The cost is low, the barriers to entry are few, and the payoff is huge…. »Read full article on AARP site
The University of Arizona Health Sciences Arizona Center on Aging offers two amazing resources that provide fact sheets on every aspect of elder care for providers and care partners.
»Elder Care – A Resource For Interprofessional Providers
This compendium of engaging single page, practical, evidence-based Elder Care Provider Fact Sheets synthesize key concepts in common geriatric syndromes and common diseases in older adults.
»Care Partner Information: Alzheimer’s Disease and Related Dementia Caregiving Tips
Care Partner Information sheets are single-page fact sheets that can be used by anyone who is providing care for an older adult with dementia – including volunteers, family caregivers, direct care workers and community health workers. These sheets provide basic background information, helpful tips and community resources on a variety of topics associated with Alzheimer’s Disease and other related dementias.
New AARP national survey finds most LGBT adults want but don’t have access to LGBT-sensitive care and services
WASHINGTON, DC—When it comes to aging-related concerns, older LGBT adults worry most about having adequate family and other social support to rely on as they age, discrimination in long-term care (LTC) facilities, and access to LGBT-sensitive services for seniors, according to a new AARP survey. Black and Latino LGBT adults report the greatest concern about future family and social supports, and greater worry about potential abuse in LTC facilities because of their race/ethnicity and sexual orientation/gender identity….
More than 3 million LGBT Americans have taken on the responsibility of being a caregiver to a loved one, according to a recent report from AARP. These two guides are designed to support the LGBT older adult caregiving community:
“Prepare to Care Guide: A Planning Guide for Caregivers in the LGBT Community”
SAGE has partnered with AARP to create this practical tool filled with information, resources, and checklists to help caregivers get organized so they can do what’s best for their loved ones.
“Caregiving in the LGBT Community: A Guide to Engaging and Supporting LGBT Caregivers Through Programming”
This user-friendly publication provides ideas, lessons learned, and best practices for expanding programs to support LGBT caregivers and those caring for LGBT older adults.
An ‘LGBT-Welcoming’ Place to Call Home
Recognizing a need, some cities are developing housing options.
“Older adults who are lesbian, gay, bisexual or transgender often age alone. As the first generation to be open about their sexuality and united around the gay rights movement, many are estranged from family and never had or have lost a partner. Prejudice may have meant fewer work opportunities over their lifetime, resulting in meager, if any, savings. Finding affordable and welcoming senior housing is a challenge…”
“Death and dying is a taboo subject. Add to that the invisibility of being an elder lesbian, gay, bisexual or transgender (LGBT) person and there is a lot to NOT talk about. What are the special problems this marginalized class of people might face and how are their needs being addressed? What are the challenges and strategies that are specific to the communities in addressing healthcare systems, social networks and end of life issues. Are there commonalities in the diverse communities that make up the alphabet soup of LGBT? How does Tucson measure up in providing appropriate support and services? These were some of the questions I asked myself as I prepared to become a “citizen folklorist” and delve into the nitty-gritty of LGBT death and dying…”
In this paper, Penelope Starr interviews the following 8 people:
- Carolyn Carter, executor of deceased former partner’s estate
- Merlin Spillers and Lee Roden, recently married couple that has been together for 45 years.
- Phil Bossenbroek, peer counselor at Southern Arizona Aids Foundation
- C. Michael Woodward, MPH, trans activist
- Sandy Davenport, LMSW, Caregiver Specialist at Pima Council on Aging and coordinator of Project Visibility
- Rev. Joe Fitzgerald, BA, MA, MAPC, Chaplain Supervisor at University of Arizona Health Network
- Julie Kennedy Oehlert, DNP, BSN, RN, Vice President, Patient Experience at University of Arizona Health Network